In March 2017, Associate Professor Andrew Kornberg from The Royal Children’s Hospital (RCH) took off from the Australian International Airshow for a fundraising adventure like no other.

Inspired by the brave and courageous patients and families who are cared for by the RCH, Andrew solo circumnavigated Australia, raising money for the hospital and meeting his patients along the way.

Time away from Melbourne 28 days
Distance travelled 24,700 + km
Places visited 38
Patients visited 6
Fuel consumed 2 000 + litres
Time in air 61 hours

Thanks to community support, Fly for the Kids fundraising successfully supported the establishment of a Complex Movement Disorders Program at The Royal Children’s Hospital. However we still need your support to ensure the program can continue for many years to come.

Launching in July 2017, the Complex Movement Disorders Program will greatly improve the lives of children and young people like Brooke who have conditions affecting their movement. Watch the video below to see Brooke’s incredible journey.

These life-limiting and progressive disorders include:

  • Genetic dystonias: involuntary muscle contractions that cause slow repetitive movements or painful abnormal postures
  • Cerebral palsy: a lack of muscle control affecting body movement, muscle coordination, muscle tone, reflex, posture and balance
  • Acquired brain injury: damage to the brain occurring after birth that affects cognitive, physical, emotional and independent functioning.
  • Neurodegenerative diseases: a range of incurable and debilitating conditions that result in progressive degeneration and death of nerve cells causing problems with movement or mental functioning.

The Complex Movement Disorders Program will feature a multidisciplinary team of neurologists, neurosurgeons, developmental medicine specialists, rehabilitation specialists, orthopaedic surgeons, and allied health professionals like physiotherapists, occupational therapists and neuropsychologists working together to provide comprehensive and world-leading care.

They will provide innovative and intensive therapies that decrease pain, increase motor function and improve their quality of life. One of these therapies is Deep Brain Stimulation (DBS), a surgical treatment that disrupts abnormal brain activity. An electrode is implanted into a patient’s brain, which is accompanied by a pacemaker-type device called a pulse generator. The generator produces electrical impulses in the electrode that override the abnormal brain activity. Often used in patients resistant to other forms of treatment, DBS can enable them to walk and talk again.

Download further information here.